Patients brought a rake to the Ministry of Health
Today, a rake along with the statement was brought to the Ministry of Health of
Today, 1.5 million of Ukrainians are living with deadly diseases, over 10,000 children among them. In the first place, these are people living with cancer, AIDS, TB and hemophilia, in other words, people whose lives are fully dependant on drugs and their timely intake. In
It has become a tradition that the tenders for procurement of drugs are announced in May and the bidding results become available in December, accordingly, the medications start being supplied to the patients only in January-February of the following year, so to say, with a delay of some 12-13-months. Many patients do not survive till this moment. “Officials tell us that procurement of drugs is being done in accordance with all the procedures and the Law. May these people look into the eyes of a child with cancer, whose life is counted by days and try to explain this to that child” – says Tetiana Ukrainets, a mother of a child who has cancer.
“Last year, I was buying my medications by myself, – says a TB patient, Oleh Huziy. – This year, I can no longer afford this. If there are no medicines available, it means I will have to stop the treatment and thus risk developing a multi-drug resistant TB in my case. It is merely impossible to cure this form of TB. I do not want to die…”
“The situation with delaying the tenders and a new Minister taking over the post in spring right before the tenders is not new, – states Oleksander Shmylo, a patient with hemophilia and the Head of the “All-Ukrainian Hemophilia Community” – Every year, we are facing this challenge when due to the corruption of the Ministry of Health people are dying and become handicap, both adults and which is even worse, the children. Besides holding immediate tenders, we request systemic changes, particularly, introducing changes into the Law of
The request letter to the Ministry of Health was signed by six organizations working with patients who live with HIV/AIDS, TB, cancer and hemophilia.
CF “Ukrainian Community Advisory Board on Access to Treatment”, Foundation “Development of Ukraine”, AUCO “All-Ukrainian Network of PLH”, Council for Supervisory Care of the Center for Childhood Cancer Hematology and Bone Marrow Transplantation of the National Specialized Hospital for Children of the Ministry of Health OKHMATDYT, NGO “All-Ukrainian Hemophilia Community”, AUCF “Zaporuka”.
Photo you can find in PhotoGallery